Pandasmom's Blog

living with PANDAS, not the furry ones…

Could it be so simple? September 28, 2009

Filed under: Uncategorized — pandasmom @ 9:06 pm

My understanding is that the antibodies we gave to A are supposed to last for 30-45 days.  So, having a setback at 20 days was mindboggling.  It seemed like such a thing would be impossible. 

I asked the pool of experts I know, other PANDAS parents, how this could have happened.  Of all the answers I got, it seems to come down to 2 things.  Somehow she was exposed to strep – likely at school or at the ped’s office.  The other part I learned is that we are not on enough antibiotics for a PANDAS child.  Whether this is what caused the return of the symptoms or not, it seems like A should be on a high dose of daily antibiotics rather than a high dose only twice per week. 

This does make sense to me and I wonder if it’s possible that this is why she relapsed last month.  I know that I will be giving her a daily dose until we see the ped again this Friday.

Advertisements
 

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

w

Connecting to %s