My understanding is that the antibodies we gave to A are supposed to last for 30-45 days. So, having a setback at 20 days was mindboggling. It seemed like such a thing would be impossible.
I asked the pool of experts I know, other PANDAS parents, how this could have happened. Of all the answers I got, it seems to come down to 2 things. Somehow she was exposed to strep – likely at school or at the ped’s office. The other part I learned is that we are not on enough antibiotics for a PANDAS child. Whether this is what caused the return of the symptoms or not, it seems like A should be on a high dose of daily antibiotics rather than a high dose only twice per week.
This does make sense to me and I wonder if it’s possible that this is why she relapsed last month. I know that I will be giving her a daily dose until we see the ped again this Friday.