A lot has happened over here these past few weeks. C got strep again almost exactly one month after the last infection. I think to the general public who are not familiar with PANDAS this is difficult to understand. C’s strep is not the standard strep. In fact, I don’t even know how to categorize it. Until last week, I thought it was a strep infection that was internal to her body, but at this point we are now questioning if it is a topical strep infection. Who in the world knew that you could have strep on your skin??? I’m not sure if this is correct or not, but I don’t think the general public gets strep on their skin. I am thinking you must have to be a carrier in order for this to happen; otherwise we would all have it!
So, we went through another round of gummi bears in the form of Augmentin so that C would keep them down. It is now clear that C will continue to get strep until we can either eradicate it from inside her body or on her skin. At this point, we have to determine which type of infection it is. We had been contemplating IV antibiotics for C because she can’t keep the Clindamyacin down but apparently IV is not as effective as oral. So it was imperative that we figure out a way to get her to take the medicine orally. Enter, the orange tic tacs. Somehow, C easily swallowed orange tic tacs with not problem. I tried this with her for about a week. She wasn’t thrilled with the idea, but she did it. Once we got good with swallowing tic tacs, we then had the compounding pharmacy (our new best friends) make up the smallest capsule they could of the antibiotic.
We tried to give her the first round of the drug and called it a white tic tac. She looked at it and instantly said “I no yike dat white tic tac”. I told her she needed to take it anyway. Luckily we were in the driveway because we had a small battle where I told her to just swallow it. She tried and then promptly threw up all over me. AGAIN! So, back to the compounding pharmacy we went to get something that dentists use. THey make something that kills a person’s gag reflex. We gave this to C and then had her take the white tic tac. She was very mad about it and was complaining. She tried to vomit it but all the sudden it went down! She was so proud of herself!!! So, now we will go back to the compounding pharmacy again to get 30 more of the anti-gag things and hopefully get rid of this strep from C.
In case anyone new is reading this, I need to point out that C is NOT the child with PANDAS. But C is the carrier that keeps re-infecting her sister, A.