It has been a full year now since we came upon a true diagnosis for A. We’ve been dealing with her symptoms since she was 9 months old, but have only had a diagnosis since about May, June and July of last year. There is only one test available at this time to provide a definitive answer to whether a child has PANDAS or not. The test is being done at a research facility at the University of Oklahoma. We worked with this group last summer and they were kind, efficient and helpful in a time of desperation for our family.
It appears that PEPSI is donating money to worthy causes each month. I would love to ask you all if you could take a look at this page and vote for PANDAS. There appear to be over 1000 causes up for competition. I’d love your vote for PANDAS but you might also find another cause that is near and dear to your heart. The voting closes at the end of this month.
Here is an excerpt of the research being done by the group that will receive the funding if they win: Dr. Cunningham is a research director at the Univ. of Oklahoma. She has been tirelessly researching the autoimmune process involved in PANDAS. She is on the verge of a medical breakthrough, which will help 1000’s of children suffering with tics, ocd, etc. receive the proper diagnosis and treatment.
And here is the link to vote: http://www.refresheverything.com/PANDAS
Please let me know if you have any questions! Thank you so much!