Pandasmom's Blog

living with PANDAS, not the furry ones…

Hospital? January 19, 2013

Filed under: Uncategorized — pandasmom @ 6:58 pm

I don’t think there have been huge improvements in A from the steroids.  I am so frustrated and let down.  It turns out we were administering the steroids at too low of a dose (mom error in reading the label), but we have upped her dose to the true Rx and then upped it again to the max dose.  I don’t feel like we are seeing what we should be.

After another rough morning I told J that I think we should go for IVIG.  We haven’t done this in almost 3 years.  But the rest of our bag of tricks aren’t working.  J thinks that IVIG has never worked for us and that this is just our child.  I think he is just beaten down.  I think it does work but is short lived.

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